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“On the Outside Looking In”

ON SALE NOW: Russell’s book “On the Outside Looking In”

New Cyberbullying Report Highlights Why We Need to Talk about Disability and Mental Health

Headshot of woman with dark hair

Renee Fabian


Editor’s Note

If you experience suicidal thoughts or have lost someone to suicide, the following post could be potentially triggering. You can contact the Crisis Text Line by texting “START” to 741741.

Russell Lehmann knows firsthand the impact cyberbullying can have on your life. When rapper J. Cole used a slur in reference to autistic people on Drake’s track “Jodeci Freestyle” in 2013, Lehmann wanted to use his voice to fight back. He posted a video on YouTube of his spoken word poem performance in response to J. Cole’s lyrics that quickly went viral. The comments that rolled in were, as Lehmann said, “pretty brutal.”

Lehmann, who is autistic and now a motivational speaker, said at the time he was struggling, very isolated and didn’t have much contact with the outside world. After the backlash and cyberbullying he received in response to his video, not only did he want to retreat away even more, but his mental health suffered.

“This was the first time I was ever attacked in my life so personally and it made me never want to use my voice again,” Lehmann told The Mighty. “I used my voice and my poetry as an outlet, and now to get attacked, on top of being attacked [by J. Cole’s song]. I really fell into a depression, got very anxious, got very angry, and it made me just want to close out the world even more.”

Lehmann’s experience isn’t uncommon, in fact, people with disabilities are almost twice as likely to be bullied online. In a survey of more than 20,000 students with and without disabilities, the Ruderman Family Foundation found students with disabilities were nearly twice as likely to be cyberbullied, and experience depression and suicidal thoughts at higher rates, than those without disabilities.

The paper, which was published on Wednesday and co-authored by Ruderman Family Foundation Chief Inclusion Officer Miriam Heyman, Ph.D., found about 33% of students with disabilities experienced cyberbullying online in the last year. Only 20% of students without disabilities were targeted.

Disabled students are almost twice as likely to be involved in cyberbullying, whether they are the victim, the bully or both. Heyman said often those who cyberbully others start off as the target. When they don’t know how to deal with the painful emotions after being harassed online, they may lash out at others as the only way they know how to cope.

While we know people with disabilities face discrimination both online and off, Heyman was still surprised by what they found in the white paper. “Students with disabilities were almost twice as likely to be victims of cyberbullying. That to me actually was shocking,” Heyman told The Mighty. She continued:

We, as a society and the educational professional community, have acknowledged that social/emotional learning and teaching kids to be kind is an important part of the school experience. So we think that we’re doing that. But this is, I think, a stark reminder of the fact [that] we’re failing, as kids with disabilities are cyberbullied at twice the rate of kids without them. We, as parents, as teachers, really are missing out on a key educational component of our children’s experience.

In addition, Heyman and the foundation’s work highlights the major mental health impact cyberbullying can have on students with disabilities. Students with disabilities targeted by cyberbullying experienced depression more often than non-disabled students: 45% of disabled young people had depression compared to 31% of their peers. Cyberbullying was also connected with suicidal thoughts. Though 23% of students without disabilities said they considered suicide, 38% of students with disabilities reported suicidal thoughts after being cyberbullied.

Heyman noted the cause of mental health issues can’t be directly connected to cyberbullying exclusively, but a correlation between cyberbullying, depression and suicidal thinking can’t be ignored. This was definitely Lehmann’s experience, who said after he was ruthlessly targeted online, his mental health worsened and he considered suicide. And the mean comments online, even though Lehmann has figured out how to focus more on the positive now, still have an impact.

“There have been days when I wake up, and I see my feed and I have a breakdown,” Lehmann said. “Sometimes I have to cancel meetings. Sometimes I just lie in bed all day, because it really hits me hard mentally and emotionally.”

The Ruderman Family Foundation’s report highlights the importance of creating safer spaces online for young people with disabilities, especially because the current conversation about safety hasn’t included people with disabilities despite the Ruderman Family Foundation’s findings they are more likely to be targeted online.

Disability advocate Natalie Weaver, whose daughter Sophia recently died due to complications related to her health, faced frequent cyberbullying because of her daughter’s disabilities. Sophia had Rett syndrome and facial differences and was often the target of abuse online. Weaver advocated for Instagram and other social media platforms to update policies about reporting online abuse to include disability specifically. In 2018, Weaver advocated for a similar update to Twitter’s reporting policies. Thanks to her advocacy work, Twitter did update its harassment reporting guidelines to explicitly include people with disabilities.

“Sadly, people with disabilities are common targets for cyberbullying,” Jay Ruderman, president of the Ruderman Family Foundation, told The Mighty in a statement, adding:

It is our individual and collective responsibility to take actions which ensure that adolescents can increasingly experience the benefits of social media platforms rather than their dangers, and a crucial first step in that process is making the cyberbullying of people with disabilities a greater component of the national conversation on social media activity. That is precisely what our white paper intends to accomplish.

On the flip side, the internet can be an important place for students with disabilities to find support, especially because disabled students may feel alone in their in-person schools and communities. Ruderman’s white paper found 38% of students with disabilities found online platforms an important aspect of social support, compared to 28% of students without disabilities.

The Ruderman Family Foundation, in addition to providing resources for parents and educators to help students with disabilities stay safe online, wants to focus on fostering kindness more broadly. This could include a social media profile badge (similar to the blue verification checkmark) to indicate accounts that consistently treat others on social media with kindness. Another idea to reinforce kindness is a #BullyFree hashtag.

“At the most basic level, it starts with teaching kindness,” Heyman said of proposed interventions. “How cool would it be if every single adolescent ended every single online communication with the hashtag ‘BullyFree’ as a statement of, ‘There’s nothing bullying in this content and I’m proud of that. I’m going to display this hashtag with that’?”

The Ruderman Family Foundation’s white paper continues the organization’s tradition of ensuring people with disabilities are included in every conversation we have in society, from cyberbullying to police violence. For Lehmann, who uses his online presence as an important part of his advocacy work as well, wants other young people to know they aren’t alone and find support — not hate — online.

“I would say sticks and stones may break my bones but words hurt even more,” Lehmann said, adding:

The ignorant and the mean comments actually fueled my fire to become more passionate about spreading awareness. I want everybody in this world to have the liberation of being themselves. I don’t care if you have autism, I don’t care if you’re physically disabled, I don’t care if you have a mental health illness. We all deserve to be ourselves because a huge peace of mind comes with that. And cyber bullying is getting in the way of that and causing a lot of harm on top of it.

 

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Russell Speaking Reel

When Ignorance Becomes Awareness | Russell Lehmann | TEDxUCLA

“Diagnosed with autism at age 12, Russell went from an isolated recluse to public speaker. Where he has been and where he is, on face value, might seem like they contradict one another, but what if we left our presumptions, or arrogance, behind, and substituted it with awareness of our ignorance? Could becoming aware of what we do not know, our ignorance, be the first step we take on the path to what’s possible?” Russell Lehmann is an award-winning and internationally recognized motivational speaker and poet contextualizing autism, mental health, disabilities, and the overall human condition. His words have been featured in the USA Today, LA Times, NPR, Yahoo! News, Success Magazine and archived in the Library of Congress. A graduate of MIT’s “Leadership in the Digital Age” course, Russell sits on the national Board of Directors for The Arc and is a council member for the Autism Society of America. Russell has also been the Youth Ambassador for the mayor of Reno, Nevada, and a member of the Nevada Governor’s Council on Developmental Disabilities as well as the Nevada Commission on Autism Spectrum Disorders. Russell is also a contributor for Psychology Today. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at https://www.ted.com/tedx

Dear Russell,

On behalf of the Community Engagement Conference 2022 Planning Committee we would like to thank you again for the wonderful keynote address that you presented on our theme of “Building Community” at Truman State University in Kirksville, Missouri. The conference had over 300 people in attendance. The audience feedback on your presentation was outstanding! Out of approximately 50% of returned surveys, 100% of the respondents gave you the highest possible review on your presentation. We felt honored to have you as our guest in Northeast Missouri.

Russell, your presentation came at a pivotal moment for our community as we discuss and plan the development of the Greenwood Center for Autism in Northeast Missouri. To quote one of the key players from the conference, she said “Russell is saying exactly what everyone in this room needs to hear.”  We appreciate your transparency in sharing your inspiring personal journey. Your willingness to discuss your story, identify what worked and what didn’t work for you as well as your balance in reviewing educational and community supports had enormous impact on our community leadership. We are confident that your message will be considered in the planning and providing services for the autistic community in Northeast Missouri for many years to come.

In addition, the participants were particularly appreciative of the round table discussion which you led following lunch. So many of the people receiving community services felt comfortable enough to speak up and share their thoughts. Many participants said that they have never seen that level of participation from the consumers of our services in the history of this conference. Together we all agreed it was because of your motivational speaking style and ability to connect on a deeply personal level with your audience.

Russell, your ability to communicate a positive and inspiring message to people with developmental disabilities has emboldened many to speak up and embrace self-advocacy. Following your presentation, several local citizens impacted by autism have come together and are beginning to share their stories in support of one another. You modeled for many what leadership and vision looks like. You demonstrated how that vision can help a community come together. We cannot express enough our gratefulness for all that you said and did during your visit. We look forward to continuing our communications with you as your message continues to change the world.

Thank you for all that you do

Crystal Aminirad

Executive Director

Welcome and Keynote Speaker

Russell Lehmann | Speaker, Poet, Advocate

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Russell Lehmann - Breakout Session

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Board & Council Positions

The Arc of the United States
  National Board of Directors
Legal Reform for the Intellectually and Developmentally Disabled
  (LRIDD) National Board of Directors
NEXT for Autism
  Advisory Council

Autism Society of America
  Co-Chair, National Police Safety Taskforce
  Strategic Planning Committee

ProFound
  Founding Member & Advisor

Past Clients

SXSW EDU
March | Austin, TX

Life Works Autism Conference
March | Longview, WA

East Asia Teachers’ Conference
March | Kota Kinabalu, Malaysia

United Nations World Autism Awareness Day
April | New York, NY

Disability Policy Seminar
April | Washington, D.C.

The Arc of Illinois Annual Conference
April | Chicago, IL

NYU – Abu Dhabi Shifting Perspectives & the Evolution of Our Autism Journeys
April | Abu Dhabi, United Arab Emirates

START National Training Institute
May| Austin, TX

Supported Life Conference
May | Sacramento, CA

Tennessee Disability MegaConference
May | Nashville, TN

MA Department of Developmental Services
June | Boston, MA

National Autistic Society’s “The Autism Show”
June | United Kingdom

Lighting the Way Conference
June | Sioux Falls, SD

North Dakota Advocacy Conference
June | Bismarck, ND

The Arc of the US Summer Leadership Institute
July| Chicago, IL

August | Coming Soon

Autism Across the Lifespan
September | Huntington, WV

The Arc of the US Annual Conference
September| New Orleans, LA

Mississippi Trauma Conference
September| Jackson, MS

UConn LEND
September | Hartford, CT

October | Coming Soon

November | Coming Soon

Autism Investor Summit
February | Los Angeles, CA

Alaska Statewide Special Education Conference
February | Anchorage, AK

SXSW EDU
March | Austin, TX – Postponed, COVID

Life Works Autism Conference
March | Longview, WA – Postponed, COVID

All Born In Conference
April | Portland, OR – Postponed, COVID

Tennessee Virtual Disability MegaConference
May | Nashville, TN

Nevada Public Health Foundation’s Virtual Mental Health Conference
June | Las Vegas, NV

July | Canceled, COVID

August | Canceled, COVID

North Dakota Virtual Conference
September | Bismarck, ND

Mississippi Trauma Virtual Conference
September | Jackson, MS

UConn LEND Webinar
September | Hartford, CT

Anger Me Not Conference – Canceled
October | Stevens Point, WI

Middle East & North Africa (MENA) Mental Health Conference
November | Virtual

STAR Tennessee Virtual Summit
November | Virtual

Speak Up, Speak Out Conference – Virtual
November | Chicago, IL

YAI Westchester Autism Conference
January | Westchester, NY

Pacific Rim International Disability Conference
March | Honolulu, HI

Starkloff Disability Institute
March | St. Louis, MO

Partners in Policymaking Reunion
March | Franklin, TN

Lark & Owl Booksellers
March | Georgetown, TX

Wisconsin Autism Society Annual Conference
April | Wisconsin Dells, WI

Denville Township School District
April | Denville, NJ

GRASP Annual Conference
May | New York, NY

MIT Leadership in Advocacy
May | Boston, MA

King’s College of London
May | London, UK

Michigan Peer Conference
May | Lansing, MI

Missouri Mental Health Institute
May | Lake Ozark, MO

Mississippi disAbility MegaConference
June | Jackson, MI

Healthy Relationships and Sexuality in Autism
June | Cincinnati, OH

CRAVE Summer Camp
June | Reno, NV

NACDD Annual Conference
July | New Orleans, LA

Georgetown Public Schools
August | Georgetown, TX

Yolo County Office of Education Staff Retreat
August | Woodland, CA

Yuba City Office of Education Staff Retreat
August | Yuba City, CA

University of South Dakota Disabilities Symposium
September | Sioux Falls, SD

Partners in Policymaking Graduation
September | Las Vegas, NV

UConn LEND Lecture
September | Hartford, CT

Region 10 School District Training
October | Dallas, TX

Wyoming ASD Summit
October | Jackson Hole, WY

Flandreau Santee Sioux Tribe
October | Flandreau, SD

Montana Youth Transitions Conference
November | Helena, MT

2nd Annual University of Washington Autism Center’s Benefit Dinner
January | Seattle, WA

20th Annual Delaware LIFE Conference
January | Dover, DE

Nevada Association for School Psychologists
January | Reno, NV

10th Annual Dare to Dream Conference
May | Providence, RI

UCONN LEND Program
September | Mansfield, CT

Delaware Partners in Policymaking Graduation Ceremony
September | Dover, DE

OCALICON
November | Columbus, OH

Autism Behavioral Services
March | Grafton, MA

Meet & Greet w/ Dr. Julie Vargas
April | Boston, MA

C.I.T. First Responder Training
May | Reno, NV

RAAC’s Autism and Mental Health Across the Lifespan
June | Cincinnati, OH

National EPIC Conference
August | Las Vegas, NV

University of South Dakota’s Advocacy Symposium
September | Sioux Falls, SD

– 2016 –
Fundraiser for Miss Nevada
July | Las Vegas, NV

Lewis County Autism Conference
October | Chehalis, WA

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