ON SALE NOW: Russell’s book

“On the Outside Looking In”

ON SALE NOW: Russell’s book “On the Outside Looking In”

sleep

Trigger Warning: this story about sleep brings up instances of witnessed violence, suicide, sexual assault, and drug usage.

About once a month I dream. I went to a few sleep study doctors in my early 20s; I was getting so little
sleep nightly that I was developing body muscle spasms and nausea.

They found out a remarkable thing: my brain only goes into REM sleep and deep sleep cycles for about a minute and pops out again. I rarely achieve theta-state sleep. Basically, it’s a fancy way of saying I don’t sleep well. One study observer tells me, “You must really be tired!”

I am. I was also the fool who parted with his money and offered a prescription for sleep meds that made me feel worse. According to them, I would have a shortened lifespan, risk of tachycardia, and metabolic shutdown if things didn’t change. I didn’t want to be on narcotics. I was told to do therapy, eat better,
stop working in kitchens, quit getting rowdy at shows all night, and get exercise. I really didn’t care. I was in pain, in a psychologically damaging relationship, and began developing ulcers due to a severe dairy allergy. By 2010, I weighed 268 lbs and was throwing up blood. Two hospital scares. I was falling apart.
It’s really hard to say if a lack of sleep was the root of it all, but it certainly didn’t help. I began training in Aikido a few years prior, I stopped hanging around fake and shitty scene people and got the food allergy dialed in. I dropped 45 lbs in three months of ulcer treatment and removed all dairy from my diet.

I could have saved myself $1,000 by not doing sleep research only to get a fancy graph to agree with me. I don’t dream much, but I do, however, get occasional nightmares. Lucid and wicked, it’s usually me, in
my room, barely aware of my surroundings but in full view of it all. Things like shadows growl and
surround me. I can do nothing. This goes on for hours. The next day feels as if I’m a rag doll. I cramp and I am thirsty from pumping so much adrenaline. In other cases, my brain pieces together a vivid
patchwork of memories, from my bio-mother beating the shit out of me or hunting me with a yardstick, getting attacked and stabbed in a tent camp when I was on the streets, a former lover who drove drunk & recklessly just to scare me (it worked), my friend dying in my arms of an opioid overdose, and
countless other scenes of former people and places that affected me.

That’s what I dream about. When I say I don’t dream often or sleep well, if I’m not dreaming, it’s a
GOOD thing. PTSD and CPTSD are both no joke, they reside deep within the mind and are expressed by the body as stress. It causes sickness. It’s an irrational and painful stress that affects every waking hour as well as non-waking. Some days it feels as if you are finally past it all. All it takes is a reminder, a sound, a smell, a conversation, seeing an abuser’s car (or one like it), or…a dream.

Last night, my mind concocted several dead members of my biological family. My mother, half-brother, and uncle. My mother’s drug/alcohol-addled brain finally melted in late 2018, after being a ward of the state for several mental health diagnoses. My brother took his own life about two months after she passed: no doubt the cause, he’d been in an out of psych hospitals and suicidal since his teens. The result of repeated sexual assaults by a babysitter. My uncle was no better, the same man who threatened to kill me if I came out as gay. He said they were all born with AIDS. I used this to my advantage when he came to “correct me” when I was 13, for disagreeing with my mother. Rather than have him knuckle-punch me repeatedly, I told him the truth: I was having a tough time because I was gay. He never touched me. He left, and I saw him only one more time when he violently broke into the house, high on drugs, looking for money we didn’t have. In 2005 he fell victim to a self-inflicted shotgun blast.

Why they all picked last night to visit me, or rather, why my brain, clearly in desperate need of therapy,
concocted all of this at one time, I’m not sure. The difference now is I get slightly better sleep. Especially in the last few years. I’ve been making far better decisions with whom and how I spend my time, how and why I love, and where I go. It isn’t always ideal, but I’m better. I’ve created a relationship with myself and accepted everything from an autism diagnosis to acknowledging a degrading self-image. I
disallow being swayed by terrible people, learned more about my ignorance and naïveté, and most
importantly I spend time doing good things only for me. I take walks. I cook. I eat. I hydrate. I pursue
interests, challenge myself, and practice socializing. I set career sights and help others who are like me.

To be satisfied with who I am regardless of all that happened to me isn’t easy. Some days it’s awful and I want to give up. Those aren’t the days I get nightmares or am chased by shadow demons as I rest. It’s the days I have a breakthrough or a profound realization. It’s after an evening of a good date, a swell night out with friends, or an accomplishment at work: it’s when good things happen. Even my subconscious is terrified of doing well. It waits for the next tragedy along with the rest of me. My brain doesn’t like healing or feeling better. It’s a battle of internal doubt.

Prior to now, I have never been able to sit with myself, see my face in the mirror or read my name
associated with something and feel proud. I didn’t know that was even a feeling a person was allowed to have because I was always a piece of shit according to just about everyone who was supposed to guide or love me. I’m not even sure to this day if I’ve been properly loved. That makes it rather hard to love
myself. The concept alone at first seemed laughable, some weakling’s answer to reality: that life is hard. What I did was gather dignity as a human being I never received, the approval and connection I was
denied, the safety and security that was stolen, the trust and love I was starved of having: and
stopped giving it away hoping it would be returned. I stopped being wantonly generous with myself to
others. I stopped trying to gain credit on ideas like respect and save up some for myself. I quit fighting
injustice for myself and addressed it in myself. I stopped seeking and expecting pain and recognized it as mere familiarity. This is also a work in progress.

I have been slowly and by myself discovering the right path. It requires patience and creativity.
Sometimes I take a wrong turn, decide on a detour or take a rest, and that’s ok. I know I’m headed in the right direction.

In some streak of irony, because of the work I’m doing, I really do sleep better at night. It might not be
great, but it’s better.

I can now shake off a bad dream of being visited by ugly memories of bad people and places I, unfortunately, knew for a long time. It was especially helpful knowing within the nightmare I felt shaky yet confident. I spoke loud words and declarations and intent from my core rather than a whimper.

This morning, I woke up from it, shook off the disturbing mood, and wrote this while it was still dark out. As I’ve learned, times with no light prove to be great for reflection.

I’m fucking exhausted, which is nothing new. Feeling okay about it, accomplished even, that part certainly is.

Share this post…

Facebook
Twitter
LinkedIn
Pinterest

About Kyle

“Kyle Weiss is a 43-year-old autism advocate, storyteller, and accomplished writer, sharing his tumultuous past, as well as current thoughts, for community-building and encouraging human kindness. His personal time is spent deeply researching culinary subjects and attempting to be extroverted.”

Sign Up For Our Mailing List

Join Russell’s quest to spread authentic awareness for autism and mental health. Sign up for our mailing list to receive updates on Russell’s advocacy, outreach efforts, speaking engagements, and inspirational commentary on life’s challenges!

Plus, you’ll receive a FREE tip guide on Russell’s 5 Pillars of Perseverance©!

(We promise never to spam you!)

Contact Russell

Russell Speaking Reel

When Ignorance Becomes Awareness | Russell Lehmann | TEDxUCLA

“Diagnosed with autism at age 12, Russell went from an isolated recluse to public speaker. Where he has been and where he is, on face value, might seem like they contradict one another, but what if we left our presumptions, or arrogance, behind, and substituted it with awareness of our ignorance? Could becoming aware of what we do not know, our ignorance, be the first step we take on the path to what’s possible?” Russell Lehmann is an award-winning and internationally recognized motivational speaker and poet contextualizing autism, mental health, disabilities, and the overall human condition. His words have been featured in the USA Today, LA Times, NPR, Yahoo! News, Success Magazine and archived in the Library of Congress. A graduate of MIT’s “Leadership in the Digital Age” course, Russell sits on the national Board of Directors for The Arc and is a council member for the Autism Society of America. Russell has also been the Youth Ambassador for the mayor of Reno, Nevada, and a member of the Nevada Governor’s Council on Developmental Disabilities as well as the Nevada Commission on Autism Spectrum Disorders. Russell is also a contributor for Psychology Today. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at https://www.ted.com/tedx

Dear Russell,

On behalf of the Community Engagement Conference 2022 Planning Committee we would like to thank you again for the wonderful keynote address that you presented on our theme of “Building Community” at Truman State University in Kirksville, Missouri. The conference had over 300 people in attendance. The audience feedback on your presentation was outstanding! Out of approximately 50% of returned surveys, 100% of the respondents gave you the highest possible review on your presentation. We felt honored to have you as our guest in Northeast Missouri.

Russell, your presentation came at a pivotal moment for our community as we discuss and plan the development of the Greenwood Center for Autism in Northeast Missouri. To quote one of the key players from the conference, she said “Russell is saying exactly what everyone in this room needs to hear.”  We appreciate your transparency in sharing your inspiring personal journey. Your willingness to discuss your story, identify what worked and what didn’t work for you as well as your balance in reviewing educational and community supports had enormous impact on our community leadership. We are confident that your message will be considered in the planning and providing services for the autistic community in Northeast Missouri for many years to come.

In addition, the participants were particularly appreciative of the round table discussion which you led following lunch. So many of the people receiving community services felt comfortable enough to speak up and share their thoughts. Many participants said that they have never seen that level of participation from the consumers of our services in the history of this conference. Together we all agreed it was because of your motivational speaking style and ability to connect on a deeply personal level with your audience.

Russell, your ability to communicate a positive and inspiring message to people with developmental disabilities has emboldened many to speak up and embrace self-advocacy. Following your presentation, several local citizens impacted by autism have come together and are beginning to share their stories in support of one another. You modeled for many what leadership and vision looks like. You demonstrated how that vision can help a community come together. We cannot express enough our gratefulness for all that you said and did during your visit. We look forward to continuing our communications with you as your message continues to change the world.

Thank you for all that you do

Crystal Aminirad

Executive Director

Welcome and Keynote Speaker

Russell Lehmann | Speaker, Poet, Advocate

Presenter(s) Knowledge of topic

Content presented in presentation

Usefulness of information presented

Clarity of objectives of presentation

Understanding of subject matter AFTER presentation

Comments

10

10

10

10

10

none

10

9

10

10

10

Would love to have him speak to students. I will look over his videos to present to kiddos.

10

10

10

10

10

Wonderful information and thank you for sharing your own experiences

10

10

10

10

10

none

10

9

10

10

10

Very inspirational!

10

9

10

10

10

none

10

10

10

9

6

none

10

6

7

10

10

none

8

7

7

6

5

none

10

10

10

10

10

none

10

10

10

10

10

none

10

10

10

10

10

AMAZING!!!

10

10

10

9

8

none

10

10

10

10

10

none

10

10

10

10

10

none

10

10

10

10

10

This was fabulous!

10

10

10

10

10

none

Russell Lehmann - Breakout Session

Presenter(s) Knowledge of topic

Content presented in presentation

Usefulness of information presented

Clarity of objectives of presentation

Understanding of subject matter AFTER presentation

Comments

10

10

10

10

10

none

10

10

10

10

10

none

10

10

10

10

10

none

10

10

10

10

10

none

10

9

10

10

10

I wish there was more time for Q&A. I felt talked to for an hour, which was fine, but I would have liked more of an interactive presentation.

10

10

10

10

10

Again, very good speaker

10

10

10

10

10

none

10

10

10

10

10

none

10

10

10

10

10

none

8

7

7

6

5

none

10

10

10

10

10

Great presentation

10

10

10

10

10

none

10

10

10

10

10

This guy is so inspiring

9

9

9

9

9

none

10

10

10

10

10

none

10

10

10

10

10

none

10

10

10

10

10

none

10

10

10

10

10

Grateful for his articulate, personal and very honest story shared with us

10

10

10

10

10

none

8

8

8

8

8

none

10

10

10

10

10

Great perspective and reminders

8

8

8

8

8

none

10

10

10

10

10

none

Board & Council Positions

The Arc of the United States
  National Board of Directors
Legal Reform for the Intellectually and Developmentally Disabled
  (LRIDD) National Board of Directors
NEXT for Autism
  Advisory Council

Autism Society of America
  Co-Chair, National Police Safety Taskforce
  Strategic Planning Committee

ProFound
  Founding Member & Advisor

Past Clients

SXSW EDU
March | Austin, TX

Life Works Autism Conference
March | Longview, WA

East Asia Teachers’ Conference
March | Kota Kinabalu, Malaysia

United Nations World Autism Awareness Day
April | New York, NY

Disability Policy Seminar
April | Washington, D.C.

The Arc of Illinois Annual Conference
April | Chicago, IL

NYU – Abu Dhabi Shifting Perspectives & the Evolution of Our Autism Journeys
April | Abu Dhabi, United Arab Emirates

START National Training Institute
May| Austin, TX

Supported Life Conference
May | Sacramento, CA

Tennessee Disability MegaConference
May | Nashville, TN

MA Department of Developmental Services
June | Boston, MA

National Autistic Society’s “The Autism Show”
June | United Kingdom

Lighting the Way Conference
June | Sioux Falls, SD

North Dakota Advocacy Conference
June | Bismarck, ND

The Arc of the US Summer Leadership Institute
July| Chicago, IL

August | Coming Soon

Autism Across the Lifespan
September | Huntington, WV

The Arc of the US Annual Conference
September| New Orleans, LA

Mississippi Trauma Conference
September| Jackson, MS

UConn LEND
September | Hartford, CT

October | Coming Soon

November | Coming Soon

Autism Investor Summit
February | Los Angeles, CA

Alaska Statewide Special Education Conference
February | Anchorage, AK

SXSW EDU
March | Austin, TX – Postponed, COVID

Life Works Autism Conference
March | Longview, WA – Postponed, COVID

All Born In Conference
April | Portland, OR – Postponed, COVID

Tennessee Virtual Disability MegaConference
May | Nashville, TN

Nevada Public Health Foundation’s Virtual Mental Health Conference
June | Las Vegas, NV

July | Canceled, COVID

August | Canceled, COVID

North Dakota Virtual Conference
September | Bismarck, ND

Mississippi Trauma Virtual Conference
September | Jackson, MS

UConn LEND Webinar
September | Hartford, CT

Anger Me Not Conference – Canceled
October | Stevens Point, WI

Middle East & North Africa (MENA) Mental Health Conference
November | Virtual

STAR Tennessee Virtual Summit
November | Virtual

Speak Up, Speak Out Conference – Virtual
November | Chicago, IL

YAI Westchester Autism Conference
January | Westchester, NY

Pacific Rim International Disability Conference
March | Honolulu, HI

Starkloff Disability Institute
March | St. Louis, MO

Partners in Policymaking Reunion
March | Franklin, TN

Lark & Owl Booksellers
March | Georgetown, TX

Wisconsin Autism Society Annual Conference
April | Wisconsin Dells, WI

Denville Township School District
April | Denville, NJ

GRASP Annual Conference
May | New York, NY

MIT Leadership in Advocacy
May | Boston, MA

King’s College of London
May | London, UK

Michigan Peer Conference
May | Lansing, MI

Missouri Mental Health Institute
May | Lake Ozark, MO

Mississippi disAbility MegaConference
June | Jackson, MI

Healthy Relationships and Sexuality in Autism
June | Cincinnati, OH

CRAVE Summer Camp
June | Reno, NV

NACDD Annual Conference
July | New Orleans, LA

Georgetown Public Schools
August | Georgetown, TX

Yolo County Office of Education Staff Retreat
August | Woodland, CA

Yuba City Office of Education Staff Retreat
August | Yuba City, CA

University of South Dakota Disabilities Symposium
September | Sioux Falls, SD

Partners in Policymaking Graduation
September | Las Vegas, NV

UConn LEND Lecture
September | Hartford, CT

Region 10 School District Training
October | Dallas, TX

Wyoming ASD Summit
October | Jackson Hole, WY

Flandreau Santee Sioux Tribe
October | Flandreau, SD

Montana Youth Transitions Conference
November | Helena, MT

2nd Annual University of Washington Autism Center’s Benefit Dinner
January | Seattle, WA

20th Annual Delaware LIFE Conference
January | Dover, DE

Nevada Association for School Psychologists
January | Reno, NV

10th Annual Dare to Dream Conference
May | Providence, RI

UCONN LEND Program
September | Mansfield, CT

Delaware Partners in Policymaking Graduation Ceremony
September | Dover, DE

OCALICON
November | Columbus, OH

Autism Behavioral Services
March | Grafton, MA

Meet & Greet w/ Dr. Julie Vargas
April | Boston, MA

C.I.T. First Responder Training
May | Reno, NV

RAAC’s Autism and Mental Health Across the Lifespan
June | Cincinnati, OH

National EPIC Conference
August | Las Vegas, NV

University of South Dakota’s Advocacy Symposium
September | Sioux Falls, SD

– 2016 –
Fundraiser for Miss Nevada
July | Las Vegas, NV

Lewis County Autism Conference
October | Chehalis, WA

Photo Gallery

Video Gallery